For Autistic Children and Adults, their Caregivers and Health Providers

COVID-19 Vaccine & Pandemic Resources

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COVID-19 Vaccine Information

COVID-19 Infection Information

COVID-19 Vaccine Booster

Vaccine Facts

  • People with autism have higher rates of underlying health conditions, and those conditions put them at risk for severe disease if they get COVID.

  • Moderately or severely immunocompromised people have different recommendations for COVID-19 vaccines, including boosters.

  • If you are moderately or severely immunocompromised (have a weakened immune system), you are at increased risk of severe COVID-19 illness and death. Additionally, your immune response to COVID-19 vaccination may not be as strong as in people who are not immunocompromised.

  • You can self-attest to your moderately or severely immunocompromised status, which means you do not need any documentation of your status to receive the COVID-19 vaccine or booster doses wherever they are offered.

  • Autistic people who live in residential settings with many other people, which we call congregate facilities, are more likely to contract COVID.

  • Some states have found people with intellectual disabilities, some of whom also have autism, may have a greater risk of dying from COVID if they become infected.

  • People who need direct support also face greater exposure risk because service providers often see multiple people in a day or a week, and close contact is unavoidable.

  • Please talk with your healthcare provider about your health conditions, living situation, their advice about the vaccination, and what is best for you.

  • Because of what we know about how COVID affects people with disabilities, including autism, getting a vaccine is the best way to protect yourself and your loved ones from severe complications from COVID.

  • COVID-19 vaccines are safe and effective. Research shows that it is also safe for children to get the COVID-19 vaccine and other vaccines on the same day.

  • Everyone 6 months and older is now eligible to get a free COVID-19 vaccination.

  • Common side effects are pain, redness, and swelling in the arm where you got your shot. Tiredness, headache, muscle pain, fever, and nausea are sometimes also experienced.

  • COVID-19 vaccination helps protect people from getting COVID-19. Some people have side effects from the vaccine, typical signs that their body is building protection. These side effects may affect their ability to do daily activities, but they should go away in a few days. Some people have no side effects, and allergic reactions are rare.

  • To reduce pain where the shot is, try applying a clean, cool, wet washcloth over the area and use or exercise your arm to reduce soreness. Drink plenty of fluids and dress lightly to minimize discomfort from fever.

  • Side effects can affect you or your child’s ability to do daily activities, but they should go away in a few days.

  • In most cases, discomfort from pain or fever is a typical sign that the body is building protection.

Testing Types

Viral tests look for a current infection with SARS-CoV-2, the virus that causes COVID-19, by testing specimens from your nose or mouth. There are two main types of viral tests: nucleic acid amplification tests (NAATs) and antigen tests. In certain circumstances, one test type may be recommended over the other. All tests should be performed following the FDA’s requirements.

  • NAATs, such as PCR-based tests, are most often performed in a laboratory. They are typically the most reliable tests for people with or without symptoms. These tests detect viral genetic material, which may stay in your body for up to 90 days after you test positive. Therefore, you should not use a NAAT if you have tested positive in the last 90 days.

  • Antigen tests* are rapid tests that produce results in 15-30 minutes. They are less reliable than NAATs, especially for people who do not have symptoms. A single negative antigen test result does not rule out infection. To best detect infection, a negative antigen test should be repeated at least 48 hours apart (known as serial testing). Sometimes, a follow-up NAAT may be recommended to confirm an antigen test result.

Self-tests, or at-home tests, are usually antigen tests that can be taken anywhere without going to a specific testing site. Follow FDA and manufacturer’s instructions, including the number of times you may need to test. Multiple negative test results increase the confidence that you are not infected with the virus that causes COVID-19.

  • You can order free self-test kits at COVIDtests.gov or purchase tests online, in pharmacies, and in retail stores.

  • You can also visit the FDA’s website to see a list of authorized tests.

  • Negative results do not rule out SARS-CoV-2 infection and should not be used as the sole basis for treatment or patient management decisions, including infection control decisions. Please see FDA guidance on the use of at-home COVID-19 antigen tests.

Precautions & Isolation

If you have COVID-19, you can spread the virus to others. Precautions you can take to prevent spreading it are isolation, masking, and avoiding contact with people who are at high risk of getting very sick. Isolation is used to separate people with confirmed or suspected COVID-19 from those without.

Regardless of vaccination status, you should isolate yourself from others when you have COVID-19.

You should also isolate if you are sick and suspect you have COVID-19 but do not yet have test results. If your results are positive, follow the full isolation recommendations below. If your results are negative, you can end your isolation.

If You Test NEGATIVE

You can end your isolation

If You Test POSITIVE

Follow the full isolation recommendations below. 

Isolation Recommendations

When you have COVID-19, isolation is counted in days, as follows:

If You Had No Symptoms

Day 0 is the day you were tested (not the day you received your positive test result)

  • Day 1 is the first full day following the day you were tested

  • If you develop symptoms within 10 days of when you were tested, the clock restarts at day 0 on the day of symptom onset

If You Had Symptoms

  • Day 0 of isolation is the day of symptom onset, regardless of when you tested positive

  • Day 1 is the first full day after the day your symptoms started isolation

  • If you test positive for COVID-19, stay home for at least 5 days and isolate from others in your home.

You are likely most infectious during these first 5 days.

Removing Your Mask

After you have ended isolation when you are feeling better (no fever without the use of fever-reducing medications and symptoms improving):

  • Wear your mask through day 10, or

  • If you have access to antigen tests, you should consider using them. With two sequential negative tests 48 hours apart, you may remove your mask sooner than day 10.

Note: If your antigen test results (1) are positive, you may still be infectious. You should continue wearing a mask and wait at least 48 hours before taking another test. Continue taking antigen tests at least 48 hours apart until you have two sequential negative results. This may mean you must continue wearing a mask and testing beyond day 10.

After you have ended isolation, if your COVID-19 symptoms recur or worsen, restart your isolation on day 0. Talk to a healthcare provider if you have questions about your symptoms or when to end isolation.

(1) As noted in the Food and Drug Administration labeling for authorized over-the-counter antigen tests, negative test results do not rule out SARS-CoV-2 infection and should not be used as the sole basis for treatment or patient management decisions, including infection control decisions.

Frequently Asked Questions

  • Most of what we know is not specific to people with autism, with a few exceptions. For example, autistic people who live in residential settings with many other people, which we call congregate facilities, are more likely to contract COVID, much like older people in nursing homes. But also, people with autism have higher rates of underlying health conditions, and those conditions put them at risk for severe disease if they get COVID. People with behavioral or developmental conditions like autism may have other difficulties with preventive measures and communication. Some states have found people with intellectual disabilities, some of whom also have autism, may have a greater risk of dying from COVID if they become infected. And, for people who need direct support, that also comes with greater exposure risk because service providers often see multiple people in a day; or a week and close contact is unavoidable. All of these are reasons it is critical to get one of the approved COVID-19 vaccines as soon as you are able.

  • Getting vaccinated against COVID-19 can lower your risk of getting and spreading the virus that causes COVID-19. Vaccines can also help prevent serious illness and death. All steps have been taken to ensure that vaccines are safe and effective for people ages 6 months and older. If you already had COVID-19, you should still get a COVID-19 vaccine for added protection. Getting sick with COVID-19 can cause severe illness or death, even in children, and we can’t reliably predict who will have a mild or severe illness. You may have long-term health issues after COVID-19 infection. Even people who do not have symptoms when they are initially infected can have these ongoing health problems. People who are sick with COVID-19 may spread COVID-19 to others including friends and family who are not eligible for vaccination and people at increased risk for severe illness from COVID-19.

  • Some people have side effects from the vaccine, which are normal signs that their body is building protection. These side effects may affect their ability to do daily activities, but they should go away in a few days. Some people have no side effects, and allergic reactions are rare. Common side effects include pain, redness, and swelling on the arm you got the shot. Some other common side effects are fever, tiredness, headache, body ache, chills, and at times nausea. Severe allergic reactions after a COVID-19 vaccine are rare.

  • Children can get a COVID-19 vaccine and other vaccines at the same visit.

  • Talk to a doctor about taking over the- counter medications, such as ibuprofen, acetaminophen, aspirin (only for people ages 18 years or older), or antihistamines for any pain and discomfort experienced after getting vaccinated. People can take these medications to relieve side effects after vaccination if they have no other medical reasons that prevent them from taking these medications normally. Ask your child’s healthcare provider for advice on using a non-aspirin pain reliever and other steps you can take at home to comfort your child after vaccination. Also, to reduce pain and discomfort where the shot was given apply a clean, cool, wet washcloth to the area. Use or exercise your arm to work out the soreness. To reduce discomfort from fever drink plenty of fluids and dress lightly.

  • Many childhood vaccines are given as a series of two, three, or more doses spaced apart. Pediatricians call this the “primary series” of vaccine doses—the doses needed to build up your child’s immunity. Some vaccinations require a booster dose. And the influenza vaccine, for example, is given every year to protect us from new and different strains.

    For COVID vaccines, the dose size depends on their age, with babies and young children aged 6 months to 5 years getting a smaller dose than kids aged 5 through 11 or kids aged 12 and older. Additional primary series and booster doses are recommended for some children and teens with certain medical conditions or taking medicines that weaken the immune system.

    The CDC recommends everyone stay up to date with COVID-19 vaccination, including all primary series doses and boosters for their ages group:

    • Children ages 6 months to 4 years who completed the Moderna 2-dose primary series at least 2 months ago are recommended to receive a Moderna updated (bivalent) booster. If your child has completed their 2-dose Moderna primary series, they are up to date immediately after receiving one Moderna updated (bivalent) booster. No booster is recommended for children who completed the 3-dose Pfizer-BioNTech primary series. If your child has not completed their 3-dose Pfizer primary series, they should get an updated (bivalent) Pfizer-BioNTech vaccine as the third dose in their primary series. If your child has completed their 3-dose Pfizer-BioNTech primary series, then they are up to date with COVID-19 vaccines two weeks after their final dose.

    • Ages 5 years and older should get all primary series doses, and updated COVID-19 boosters if eligible.

    Getting a COVID-19 vaccine after you recover from COVID-19 infection provides added protection against COVID-19.

    Use CDC’s COVID-19 booster tool to learn if and when you can get boosters to stay up to date with your COVID-19 vaccines.

    To view the source of this information and a helpful chart, visit healthychildren.org.

    The CDC also offers a quiz to help you determine when you or your child will need a booster

  • Self-tests for COVID-19 give rapid results and can be taken anywhere, regardless of your vaccination status or whether or not you have symptoms.

    • They detect currentinfection and are sometimes also called “home tests,” “at-home tests,” or “over-the-counter (OTC) tests.”

    • They give your result in a few minutesand are different from laboratory-based tests that may take days to return your result.

    • Self-tests along with vaccinationwearing a well-fitted mask, and physical distancing, help protect you and othersby reducing the chances of spreading COVID-19.

    • Self-tests do not detect antibodies which would suggest a previous infection and they do not measure your level of immunity.

  • If you have any COVID-19 symptoms: test immediately.

    If you were exposed to someone with COVID-19: test at least 5 days after your exposure.

    If you test negative for COVID-19, consider testing again 1 to 2 days after your first test if you are going to an indoor event or a gathering. Test immediately before the gathering, or as close to the time of the event as possible.

    This is especially important before gathering with individuals at risk of severe diseaseolder adults, those who are immunocompromised, or people who are not up to date on their COVID-19 vaccines, including children who cannot get vaccinated yet.

Mental Health National Organizations

American Psychiatric Association – COVID-19 Resources
Mental Health Association – Treatment and Services
Mental Health Association – COVID-19 Information and Resources
MentalHealth.gov – Support and Treatment Services
American Psychiatric Association – Support and Resources for Patients and Families
American Psychology Association – Help for Emotional Crisis
National Alliance of Mental Illness – Mental Health Resources
National Institute of Mental Health – Mental Health Resources Including Federal Agencies
CDC – Coping with Stress During the Pandemic
American Psychology Association – Both Local and National Resources

Resources for Families Affected by the Pandemic

OSDH – COVID-19 Resources for Parents and Caregivers
USDA – National COVID-19 Resource for Individuals and Families
OK Family Network – Local COVID-19 Resource
Family and Children’s Services – Tulsa-Based Emotional Support
Youth.gov – National COVID-19 Resources for Families
Administration for Children and Families – National COVID-19 Resources
USA.gov – Financial Assistance for families affected by COVID-19
Benefits.gov – Financial Assistance for individuals and families affected by COVID-19
Healthy Children – COVID-19 Resources
Child Mind Institute – Support for Kids’ Mental Health during the COVID-19 Pandemic